Dear Diary,
I was around ten years old when I first heard anything about dysautonomia. It's weird how back then it didn't even seem like a big deal. I wasn't entirely sure what it meant back then and I wasn't seeing a doctor that specialized in it. Throughout my life, I have been diagnosed with viruses that have dysautonomic components and diseases that have dysautonomic components. It wasn't til years later that we finally looked into dysautonomia. I saw a few doctors and was diagnosed. Dysautonomia happens when your autonomic nervous system, which controls basically everything you don't have to think about to do, doesn't function properly. There are many different kinds of dysautonomias, but the one that I'm effected by the most is Postural Orthostatic Tachycardia Syndrome, which is usually just called POTS. With these diseases comes a whole array of weird symptoms. When I say weird, I mean it. You see, it wouldn't be weird for my feet to be extremely purple in color at times. It also wouldn't be weird for my heart rate to be about 120 laying down at rest and my blood pressure about 70/30. My heart beats fast, my blood pressure runs really low, and my temperature at normal is about 96 something. They are all part of dysautonomia. I also dehydrate quicker than most people and I don't tolerate extremely hot temperature very well. I can pass out if I stand up to quickly and it isn't strange for me to have "brain fog". My pupils dilate to the point that people think I'm high, when I'm most definitely not. Another weird thing about my dysautonomia is that I don't feel pain as another person might, which is kind of a good thing. My pain tolerance is extremely high to the point that sometimes doctors aren't sure whats wrong because I should be in more pain than I am. Digestive disorders are also a major symptom of dysautomia, and these are just some of the symptoms.
Some of these things used to scare me, especially when my brain would fog, diary.
It used to scare me to the point that I would think something was very wrong, especially during times of dysautomic crises when all these symptoms become exacerbated greatly.
I'm used to it now though.
It's strange to think that something so uncommon can become normal when you deal with it on a daily basis.
Another disease I have been dealing with is Reflex Neurovascular Dystrophy, or RND. This is a condition where your nerves don't always send the right signals to parts of your body. For instance, diary, I may break my finger and all my joints might start to hurt because the nerves are sending the pain everywhere. It mostly originates in my fingers, so if I hurt something or burn my fingers may ache the next day.
There are no known cures for these diseases.
In fact there isn't even a lot of research on these diseases yet.
You can treat the symptoms, diary, but every patient is a little different.
You basically have to experiment with different medicine.
And each medicine has its own side effects usually.
It can be very frustrating, diary.
Love Forever & Always,
ME
I was around ten years old when I first heard anything about dysautonomia. It's weird how back then it didn't even seem like a big deal. I wasn't entirely sure what it meant back then and I wasn't seeing a doctor that specialized in it. Throughout my life, I have been diagnosed with viruses that have dysautonomic components and diseases that have dysautonomic components. It wasn't til years later that we finally looked into dysautonomia. I saw a few doctors and was diagnosed. Dysautonomia happens when your autonomic nervous system, which controls basically everything you don't have to think about to do, doesn't function properly. There are many different kinds of dysautonomias, but the one that I'm effected by the most is Postural Orthostatic Tachycardia Syndrome, which is usually just called POTS. With these diseases comes a whole array of weird symptoms. When I say weird, I mean it. You see, it wouldn't be weird for my feet to be extremely purple in color at times. It also wouldn't be weird for my heart rate to be about 120 laying down at rest and my blood pressure about 70/30. My heart beats fast, my blood pressure runs really low, and my temperature at normal is about 96 something. They are all part of dysautonomia. I also dehydrate quicker than most people and I don't tolerate extremely hot temperature very well. I can pass out if I stand up to quickly and it isn't strange for me to have "brain fog". My pupils dilate to the point that people think I'm high, when I'm most definitely not. Another weird thing about my dysautonomia is that I don't feel pain as another person might, which is kind of a good thing. My pain tolerance is extremely high to the point that sometimes doctors aren't sure whats wrong because I should be in more pain than I am. Digestive disorders are also a major symptom of dysautomia, and these are just some of the symptoms.
Some of these things used to scare me, especially when my brain would fog, diary.
It used to scare me to the point that I would think something was very wrong, especially during times of dysautomic crises when all these symptoms become exacerbated greatly.
I'm used to it now though.
It's strange to think that something so uncommon can become normal when you deal with it on a daily basis.
Another disease I have been dealing with is Reflex Neurovascular Dystrophy, or RND. This is a condition where your nerves don't always send the right signals to parts of your body. For instance, diary, I may break my finger and all my joints might start to hurt because the nerves are sending the pain everywhere. It mostly originates in my fingers, so if I hurt something or burn my fingers may ache the next day.
There are no known cures for these diseases.
In fact there isn't even a lot of research on these diseases yet.
You can treat the symptoms, diary, but every patient is a little different.
You basically have to experiment with different medicine.
And each medicine has its own side effects usually.
It can be very frustrating, diary.
Love Forever & Always,
ME
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