"Do you see me? Do you care?
You talk about me, like I'm not there.
Don't get a word in when you're around
I bet you don't know what I'm about.
'Cause I will, I will speak for myself
What you see isn't all I am.
I need a place to stand.
I will, I will speak for myself.
There's so much your missing,
If you cared to listen."
--Aly & Aj "Speak for Myself"
Dear Diary,
It's time, diary. When I first started writing to you, I didn't tell you what was wrong with me. I didn't explain things, but it wasn't time for me to open you up to my world in that way. It's complicated, you see? My illnesses are not common, not well known. People don't understand them, and it bothers me. I see the way people support illnesses that they know a lot about. I see people's compassion and love for the sufferers of those diseases, but it's not that way for some people with illnesses. Some people don't get that kind of support, love, and compassion because people don't understand. They underestimate the severity and make assumptions. They just don't get it. They don't see that there are so many other illnesses out there that affect people; Like the saying goes, "Out of sight, Out of mind."
I am lucky. I have many people standing beside me, supporting me at every turn. This isn't the case for everyone, and it's time this stops, diary.
It's time to break the silence.
It's time for everyone with an illness, known or unknown, to speak.
It's time for the world to listen.
It's complicated, diary. It's complicated to educate people because some people don't want to know. Some people will always assume, always stay ignorant. But it doesn't matter anymore. It doesn't matter if people don't change. It doesn't matter if people stay ignorant because some people listen. Some people will learn, and that's all it takes.
One person.
One person to make difference.
One person to show compassion.
One person to listen.
One person to try to understand.
It's not going to happen over night. People aren't going to become aware of rare illnesses in one minute, one day, or even one year. But maybe one day ribbons will be worn world wide and car magnets will be distributed everywhere in support of people with all kinds of rare illnesses.
It's time that I educate you, diary.
Love Forever & Always,
ME
You talk about me, like I'm not there.
Don't get a word in when you're around
I bet you don't know what I'm about.
'Cause I will, I will speak for myself
What you see isn't all I am.
I need a place to stand.
I will, I will speak for myself.
There's so much your missing,
If you cared to listen."
--Aly & Aj "Speak for Myself"
Dear Diary,
It's time, diary. When I first started writing to you, I didn't tell you what was wrong with me. I didn't explain things, but it wasn't time for me to open you up to my world in that way. It's complicated, you see? My illnesses are not common, not well known. People don't understand them, and it bothers me. I see the way people support illnesses that they know a lot about. I see people's compassion and love for the sufferers of those diseases, but it's not that way for some people with illnesses. Some people don't get that kind of support, love, and compassion because people don't understand. They underestimate the severity and make assumptions. They just don't get it. They don't see that there are so many other illnesses out there that affect people; Like the saying goes, "Out of sight, Out of mind."
I am lucky. I have many people standing beside me, supporting me at every turn. This isn't the case for everyone, and it's time this stops, diary.
It's time to break the silence.
It's time for everyone with an illness, known or unknown, to speak.
It's time for the world to listen.
It's complicated, diary. It's complicated to educate people because some people don't want to know. Some people will always assume, always stay ignorant. But it doesn't matter anymore. It doesn't matter if people don't change. It doesn't matter if people stay ignorant because some people listen. Some people will learn, and that's all it takes.
One person.
One person to make difference.
One person to show compassion.
One person to listen.
One person to try to understand.
It's not going to happen over night. People aren't going to become aware of rare illnesses in one minute, one day, or even one year. But maybe one day ribbons will be worn world wide and car magnets will be distributed everywhere in support of people with all kinds of rare illnesses.
It's time that I educate you, diary.
Love Forever & Always,
ME
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